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From:
Subject: Re: [DNA] deceased person's sample
Date: Sun, 23 Jul 2006 08:56:49 EDT
In a message dated 7/22/2006 8:21:14 PM Pacific Daylight Time,
writes:
> >I had no idea this was possible. Thanks for letting me (et
> >al.) know. I purchased the test and am the contact, but I
> >am also my father's sole heir, so either way, I have legal
> >ownership of the sample.
>
> This is an interesting topic. Do we have a lawyer on the list who could
> speak to this?
I'm not a lawyer, either, but I asked the lawyer who prepared our living
trust about how to make my wishes clear. I have stored a DNA sample in our trust
documents. I used my DNA Filer kit, which I no longer sell, but similar kits
are available.
http://genetic-identity.com/DNA%20Archving/dnabanking.html
Kits can be stored indefinitely at room temperature, and they have enough DNA
to run several hundred SNP/STR tests. My sample is stored in a sealed
envelope with my signature across the seal. On a separate piece of paper I have given
permission for my sample to be used by anyone for various purposes, which I
enumerate (e.g. genealogy and research on familial hearing loss), and for my
heir to use the sample at his discretion for any purposes which I did not
enumerate. I do like the idea of having a sample completely under my control.
Although I have not followed through on this, I am also contemplating using
the DNA banking service at Prevention Genetics. They have some consent forms
which people might use as a model.
http://preventiongenetics.com/dnabanking/dnabanking.htm
I like the idea of sending a sample to a company whose primary purpose is to
store DNA and dispense it at my request to any facility. That bypasses any
problems of obtaining repeated samples and depending on competing companies to
send samples to each other. The requirement for a blood sample makes the process
a bit cumbersome, however.
Ann Turner
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